When you support one hour of research, you invest in the foundation of breakthroughs. Every hour funded brings us closer to a cure for Lowe syndrome.

When you give one hour of research, you receive an exclusive digital art print created by the Konvoj art collective!

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At the Cure Lowe Foundation, we're laser-focused on developing a breakthrough gene therapy to address the root cause of Lowe syndrome.

Every donation is carefully directed toward our core mission: delivering a functional copy of the OCRL gene to halt or even reverse disease progression.

Your support directly funds critical research and development, accelerating our mission to transform the future for those affected by this devastating rare disorder.

A Multiorgan Challenge

Lowe syndrome is a devastating rare genetic disorder that primarily affects young boys. Caused by mutations in the OCRL gene, this condition creates life-altering challenges:

Vision problems that can lead to blindness

Neurological complications affecting development

Severe kidney dysfunction requiring constant care

Currently, families face an uphill battle: available treatments only manage symptoms without addressing the root cause. Each day brings new challenges for these brave children and their dedicated families.

But there's hope on the horizon. Through groundbreaking gene therapy research, we're working to not just treat symptoms, but to transform lives. With your support, we can turn this hope into reality.

The Cure Lowe Foundation brings together a world-class team of scientists, industry experts, and patient advocates. Combined our trusted experts have developed several gene therapies and brings decades of research in Lowe Syndrome.

Meet Our Team

Dr. Siyu Chen working in the lab

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